My name is Jennie. I'm a wife and a mother. I have been married to the man of my dreams, Trever, for 9 wonderful years. We have 5 beautiful daughters who fill our lives with joy and excitement. We just had our 6th child. Our son Caleb.

I was diagnosed with a rare condition called Placenta Accreta along with Placenta Previa. Accreta is a condition where the placenta attaches to the scar tissue in the uterus. It will often continue to grow to deeper tissue (increta) and even through the uterus attaching to other organs(percreta). I ended up having an 11 hour surgery, including a hystorectomy, and bladder repair. I received 7 units of blood and blood parts. (This is a lot of blood loss for my surgeons, but minimal blood loss to those who are not as experienced in these deliveries. I spent 36 hours in the ICU after surgery. I have also had many other complications afterwards including another minor surgery 2 weeks later. These complications are somewhat normal for the type of surgery I had.

I had a team of specialists doing my surgery. Obgyns, Gyno-oncologists, trauma surgeons, urologists and anesthesiologists. This team has specialized in techniques helping with minimal blood loss. Those with accreta , loose large amounts of blood because the placenta cannot detach naturally at delivery.

My goal is to help save women's lives by giving this terrible condition a voice. So many are ignorant to its fatal attack. Doctors and women alike, need to be educated about Accreta. Many have never even heard of it. The numbers are on the rise because of so many women choosing to have c-sections when it isn't necessary. Not all women can avoid it, but many can. Please help me give Accreta a voice, by sharing the information in this blog. (There are numerous posts with information on Accreta as well as the Accreta team who took such great care of me.)

Friday, April 5, 2013

Other Survivors

Hey friends, another couple of days down since I last wrote. It has been pretty quiet around here the past few days. No major hiccups in the road to recovery, so I am thankful for that. I have been leaking a little bit since I saw urology on Tuesday. I went in to see him again today because my catheter bag sprung a leak so I needed to replace it. Yuck!! We talked about the leaking and decided that we would push the cystogram off a couple days, to let things heal even more. We don't want the cystogram to open back up any healing. I actually felt really good about that decision. My only complaint right now, is that my left side just above my hip, keeps spasming. I'm not sure what it means. I hope it's "normal."

I also had a PPA (OB) appointment today. I just saw the nurse practitioner. She just checked on the wound and wanted to see how things were going. It was nice to go to an appointment and have it be a normal checkup. Both appointments today, I left feeling more confident about healing. Good sign!

We went to visit Caleb afterwards. I was able to have some awesome skin to skin. He was too sleepy to try to latch on today so we just snuggled. I love that little guy. My girls have been the absolute love of my life all these years. I often wondered how I could feel the same way about a boy. I know, a baby is a baby no matter the gender, but watching my girls grow up has been such a treasure. I never thought I would enjoy the mother son relationship like I have with him. He is the love of my life! Along with his daddy and sisters of course. :) he is up to 5lbs 14 oz now! Last night I was checking in on him and his nurse said that she got him to take 25 ccs by mouth! The most he has ever taken was 17, and that was huge in and of itself. She then said he ave her back  about 20 of it. Lol. She said it was probably her fault. She had never worked with him before and should have tried to take it slower and burp him often in between. Whoops! Hahaha. He took it though, so we are making progress!

I have enjoyed your comments and emails/FB messages lately. I got an email from a gal in Germany. Germany! It is just so fun to connect with people from all over the world. I don't know why, it is just so fun! She has some concerns about getting pregnant again, as she faces the possibility of Accreta along with other complications.

I have also become friends with a dear woman in Oregon who will be an Accreta survivor in a few months! (she actually has percreta, we have talked about her before...) we are rooting for her and her journey through it all. I have been talking with our amazing Dr. Perlow about some new possibilities for helping out patients with the many complications that Jenifer has. Hopefully it will help her somehow.

Another woman from Gilbert just had a baby. She was able to make it through surgery with her uterus
still in tact. She had minor accreta and delivered well. Another woman told me about her survival story 16 years ago with accreta. We have breakthrough technology and modern day medicine who has saved
so many women's lives. I am so grateful for those stories of the survivors out there, to help give hope to woman facing the fear of accreta. Thanks for sharing your stories!

Lets play a little game, I am curious to see how many countries and states this blog has reached. Really even different parts of Az as well. It would be fun to turn this into a "giveaway" or something, but lets be honest... Ain't happinen right now. Anyway make a comment about where you live and how you found this blog. I know this may sound lame, but humor me. Please?!!! You guys are my connection to the outside world most of the time. How far does my little world reach? Ready set go...have a great day everyone! Lots of love, appreciation and friendship heading back to you!

19 comments:

  1. I'm from Texas! In the same ward as your sister-in-law Brianne. She posted a link on Facebook and I'm glad she did--I had never heard of accreta!

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  2. I'm from San Francisco area! Brianne used to be in our ward before she moved to Texas. Been following your journey since the first post and I am so glad to hear things are moving in a positive direction. I am keeping you and your sweet family in my prayers.

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  3. Disregard the name on my entry....my name is Aubrey and I live in Mesa. I used to work with Trever as a lifeguard and found your blog through a facebook post by a mutual friend of Trever and I. I'm due to have my 5th baby in 8 weeks and have been blessed with great pregnancies. I also had never heard of accreta but I am glad to hear that you are feeling better and your little angel is doing so well!

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  4. Hello from western North Carolina! I blog-hopped onto your blog a couple of weeks before Caleb's birth. I've been reading the blog Happy Meets Crazy for years, and Cheryl posted a link to the first Percreta post on Moss Moments, then I followed a link from there to here. I had heard of Accreta before -- I'm a bit of a birth junkie -- but I have learned a lot more about it from your blog. Thanks for getting the word out! I admire your courage and wish the best for you and all your family.

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  5. Another friend of Brianne's in her Texas ward! Thanks for sharing your story!

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  6. Queen creek! Someone linked to your blog through mine. But I am glad they did.

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  7. Coupeville, WA... but you already knew that! :)

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  8. Dianna from Chicago, Il. I had am undiagnosed placenta accreta in 2006. I had been having very strong contractions and a very lopsided belly, throughout my pregnancy. I went into labor at 38 weeks, after spotting for about 2 weeks. I had decided on natural childbirth, but, due to the accreta, my uterus couldn't contract properly.
    I had not had , a c section before, so my physicians didn't even suspect Accreta. I was given pitocin (i refused pain killers), and finally delivered after 14 hours, post rupture of membranes. My placenta didn't deliver, and my doctor decided manual extraction was required. It was profoundly traumatic, and also unsuccessful. I was rushed into surgery and ended up receiving 7 units of blood. They were able to save my uterus, but i can't have more children (i have two lovely girls). I found your blog because the trauma is still with me. I have multiple problems that i believe are results of the attempt at extraction,.and the accreta. I periodically search for more information. I am so happy that you have the support you have, and the communicative and honest physician team. Your positive approach to this struggle of amazing! Be well and keep loving your people :)

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  9. Jennie, your attitude and optimism still amaze me. It's so great to see how many people are following your story!
    Isn't it amazing how much a mother's heart can expand everytime a new little person comes into our lives? Caleb is so lucky to have all those big sisters to watch out for him!

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  10. I'm in Utah and I'm a placenta increta survivor! My youngest is now almost 18 months old and he was delivered at 36 weeks during a c-hyst. It was a rough pregnancy and a difficult recovery but I'm so thankful to be alive. I wish I'd had your blog to read during my pregnancy. I will be sharing it with anyone I know diagnosed with accreta. It is becoming an epidemic, unfortunately. Thank you for sharing your story!

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  11. Hi I'm late to the party but currently 29 weeks diagnosed with Accreta. They are telling me I need a c-hyst at 34 weeks. I am currently reading ALL of your blog posts. Thank you for sharing your story.
    I am in Lexington, South Carolina.

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  12. I'm in Boston. I lost my baby girl 3 weeks ago due to placenta percreta complications while 18 weeks pregnant.

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  13. Oh I'm so sorry! That's terrible!!

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  14. Late to the game, lol! My name is Bianca and I'm from Texas! I'm not diagnosed, yet, but I found your blog while researching placenta accreta. I've had a low lying placenta this whole pregnancy. We had been waiting to see if it would move but no luck. At my last dr appt we saw through ultrasound that my placenta just isn't moving and it's located right above my bladder where my previous csection incision is located so my doctor scheduled an MRI that'll I'll have on Wednesday. I'm 33 wks but I've had no bleeding at all. I'm preparing myself for the worst but hoping for the best. I've enjoyed reading your blog so far. Especially about your recovery so I can know what to expect.

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  15. Nice to meet you! Good luck with everything. Please keep me posted on your progress and what they find out with the MRI. Ill keep you in my prayers!

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  16. Late to the game as well. I'm from the San Francsico area and came across your blog trying to find info anout percreta.
    I am now 24 weeks and got diagnosed with percreta 4 weeks ago. Plan will be for c-hyst at 34 weeks. Currently in the hospital again with my second bleeding episode. Hope to make it to 34 weeks
    Glad to read that you are finally getting better. Scary road ahead of me

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    1. Oh Christine! Im so sorry you are going through that. And two bleeds already! Oh, boy... Im so sorry. Please keep me posted on your progress. I worry so much about my new accreta friends. Did they confirm percreta? Crummy business. You can do it. We will be praying for you!

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    2. Hey Jennifer. Yeah they confirmed complete previa with percreta that's grown into my bladder and my cervix so far. Staying in the hospital for now but haven't had any more bleeding. Made it past 24 weeks already :)
      Feel free to email or FB me I would love to hear from you. fB: tine Suldinger or email christine@3dstratum.com

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